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Participation & leadership

Nothing About Us Without Us

Survivors are not merely beneficiaries. They are leaders, advocates and experts whose lived experience provides invaluable knowledge.

Illustration representing nothing about us without us

Meaningful engagement

Participation must involve real influence

Decision-making

Influence over priorities and organisational choices.

Programme design

Shaping objectives, methods and participant experience.

Implementation

Leading activities, mentoring and community engagement.

Advocacy

Setting messages and participating safely in public dialogue.

Research and consultation

Contributing expertise with informed consent and safeguards.

Monitoring and evaluation

Defining what meaningful progress looks like.

Participation with power

A higher standard than visibility

Meaningful participation includes

  • Clear decision rights
  • Safe and voluntary involvement
  • Preparation and support
  • Recognition of expertise
  • Feedback on how input was used
  • Fair compensation where appropriate

Tokenism looks like

  • Inviting survivors after decisions are made
  • Expecting traumatic disclosure
  • Using images without informed consent
  • Unpaid emotional labour
  • No feedback or follow-through
  • Participation only for publicity

Make lived experience part of the decision—not decoration.

Partner with FREMNET to design safer, more meaningful survivor participation.